Accompanying Conditions Syndromes Books on different syndromes

Angleman Syndrome | Cerbral Palsy | Down Syndrome | Fragile X

Angelman Syndrome


The Official Parent's Source book on Angelman Syndrome: A Directory for the Internet Age
by Icon Health Publications

Cerebral Palsy

Cerebral Palsy Resource Guide for Speech-Language Pathologists
by Marilyun Sief Workinger

Children with Cerebral Palsy: A Parent's Guide
by Elaine Geralis

Down Syndrome

Communication Skills in Children With Down Syndrome: A Guide for Parents (Topics in Down Syndrome)
by Libby Kumin
Comments: Children with Down Syndrome are often delayed in developing speech but can compensate for this delay by using sign language and other skills in a technique called Total Communication. This guide provides a wealth of information about speech and language development in children with Down syndrome. Parents learn what to expect as communication skills progress from infancy through early adolescence, how Down syndrome can affect those skills, and what they can do to maximize their child's potential in this crucial area of development. This book was recommended by our son's speech therapist.

Early Communication Skills for Children with Down Syndrome: A Guide for Parents and Professionals
by Libby Kumin

Classroom Language Skills for Children bwith Down Syndrome: A Guide for Parents and Teachers
by Libby Kumin

Fragile X

The Fragile X Child
by Betty Schopmeyer, Fonda Lowe
Comments: This 1992 piece of work was a landmark for the understanding of this tragic gene mutation. Very little was understood about it and there is still much to learn. Schopmeyer and Lowe explore many aspects of the Fragile X Syndrome including its history, genetics, symptoms, and therapy techniques. As this book was published in 1992 it does contain outdated information such as the use of facilitated communication which was found through double blind studies to not truly work. Despite the improvements that have been made, I would still recommend this book for anyone of whom this syndrome has affected their lives. It gives one a much better understanding of the life of a Fragile X Child.

Children with Fragile X Syndrome: A Parent's Guide
by Jayne Dixon Weber

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